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Mesothelioma Doctors
Financial Assistance Resources for Mesothelioma Patients

  • We support helping and educating mesothelioma patients and family members to obtain the most up-to-date information on treatment options, and connecting them with mesothelioma treatment specialists, and experienced legal support to from experienced mesothelioma lawyers we have sent people to in each state. We also promote and support critically-needed research to develop more effective treatments and ultimately a cure.
  • The Mesothelioma Help Center is another tool to give mesothelioma patients and their families the latest and most relevant information about mesothelioma cancer, offer hope and support, and help patients and medical professionals with quick mesothelioma answers and support to find experienced mesothelioma legal representation in your state. We encourage you to send us new information to share with our readers of new treatments and hope for mesothelioma victims.
  • Mesothelioma is an aggressive cancer caused by asbestos. For decades, asbestos was used heavily in construction, industry, the Navy, even household products and appliances. It is still present in many homes, schools, and office buildings. The disease can arise from small exposures, and even as much as 50 years later. As a result, each year 4,000 Americans and many thousands more worldwide develop mesothelioma, and millions of us are at risk.

Mesothelioma Doctors


State

Doctor/Hospital

Phone Number

Address

AL

UAB Comprehensive Cancer Center

1-800-UAB-0933

1824 6th Avenue South, Birmingham, AL

AZ

Arizona Cancer Center

1-800-622-COPE

1515 North Campbell Ave., Tucson, AZ 85724-5024

CA

Chao Family Comprehensive Cancer Center

(714) 456-8200

101 The City Drive, Bldg, 23; Route 81, Orange, CA 92868

CA

Dr. David Jablons (UCSF Cancer Center)

(415) 885-3882

1600 Divisadero Street, San Francisco, CA 94115

CA

Dr. Kim Kerstine (City of Hope/Beckman Research Institute)

1-800-826-HOPE

1500 East Duarte Road, Duarte, California 91010

CA

Dr. Robert Cameron (UCLA Surgery)

(310) 794-7333

10833 Le Conte Ave, Los Angeles, CA, 90095

CA

Jonsson Comprehensive Cancer Center

(310) 825-5268

8-684 Factor Building , Los Angeles, CA 90095-1781

CA

Rebecca and John Moores UCSD Cancer Center

1-858-822-1222

3855 Health Sciences Drive, La Jolla, CA 92093

CA

USC/Norris Comprehensive Cancer Center

1-800-USC-CARE

1441 Eastlake Avenue, Los Angeles, CA 90033

CO

University of Colorado Cancer Center

1-800-473-2288

1665 N. Ursula St., Aurora, CO 80045

CT

Yale Cancer Center

(203) 785-4095

333 Cedar Street, New Haven, CT 06520-8028

DC

Dr. Paul Sugarbaker (Washington Cancer Institute)

(202) 877-3908

106 Irving Street NW, Suite 3900N, Washington, DC 20010

DC

Lombardi Comprehensive Cancer Center

(202) 784-4000

38 Reservoir Road NW, Washington, DC 20057

FL

Dr. Larry Robinson (Moffitt Cancer Center Institute)

(813) 972-8412

12902 Magnolia Dr. Tampa, FL 33612

IL

Dr. Hedy Lee Kindler (University of Chicago Hospitals)

(773) 702-0360

5841 S. Maryland Avenue, Chicago, IL 60637

IL

Robert H. Lurie Cancer Center, Northwestern University

(312) 908-5250

675 N. St. Clair, Galter Pavilion - 21st floor, Chicago, IL 60611

MA

Dana-Farber Cancer Institute

1-800-320-0022

44 Binney Street, Boston, MA 02115

MA

Dr. David J. Sugarbaker (Brigham and Women's Hospital)

(617) 732-6824

75 Francis Street, Boston, MA 02115

MD

Dr. Mark Krasna (University of Maryland Cancer Center)

(410) 328-6366

22 S Greene Street, Baltimore, MD 21201

MD

Dr. Stephen Yang (Johns Hopkins Oncology Center)

(410) 614-3891

401 North Broadway, Baltimore, MD 21231

MI

Barbara Ann Karmanos Cancer Institute

800-KARMANOS

4100 John R, Detroit, Michigan 48201

MI

Dr. Gregory Kalemkerian (University Michigan Cancer Center)

(734) 936-5281

1500 E. Medical Center Drive, Ann Arbor, MI 48109

MN

Mayo Clinic Cancer Center

(507) 284-2111

200 First Street SW, Rochester, MN 55905

MN

University of Minnesota Cancer Center

(612) 624-8484

420 Delaware St. SE, Minneapolis, MN 55455

NC

Comprehensive Cancer Center, Wake Forest University

1-800-446-2255

Medical Center Boulevard, Winston-Salem, NC 27157

NC

Dr. David Harpole (Duke University Medical Center)

(919) 668-8413

Trent Drive, Durham, NC 27706

NC

UNC Lineberger Comprehensive Cancer Center

(919) 966-3036

Manning Drive, Chapel Hill, NC 27599-7295

NE

Dr. Brian W. Loggie (Creighton University Medical Center)

(402) 280-4100

2500 California Plaza , Omaha, NE 68178

NH

Norris Cotton Cancer Center

1-800-639-6918

1 Medical Center Drive, Lebanon, NH 03756

NM

Dr. Claire F. Verschraegen (UNM Cancer Treatment Center)

(505) 272-4551

900 Camino de Salud NE, Albuquerque, NM 87131

NY

Cancer Research Center, Albert Einstein College of Medicine

(718) 430-2302

1300 Morris Park Avenue, Bronx, NY 10461

NY

Dr. Harvey Pass (NYU Comprehensive Cancer Center)

(212) 263-7417

530 First Avenue, Suite 9V, NY, NY 10016

NY

Dr. Robert N. Taub, MD (NY Presbyterian Medical Center)

(212) 305-4076

161 Fort Washington Avenue, New York, NY 10032

NY

Drs. Valerie Rusch and Raja Flores (Memorial Sloan-Kettering)

(212) 639-2806

1275 York Avenue, New York, NY 10021

NY

Herbert Irving Comprehensive Cancer Center

(212) 305-9327

622 West 168th Street, New York, NY 10032

NY

NYU Cancer Center

(212) 263-6485

550 First Avenue, New York, NY 10016

NY

Roswell Park Cancer Institute

1-800-ROSWELL

Elm and Carlton Streets, Buffalo, NY, 14263

OH

Arthur G. James Cancer Hospital

1-800-293-5066

300 W. 10th Avenue, Columbus, OH 43210

OH

Case Western Reserve University Hospitals

(216) 844-8797

Wearn 152, 11000 Euclid Avenue, Cleveland, OH 44106

OH

Dr. David P. Mason (Cleveland Clinic Foundation)

(216) 444-4053

9500 Euclid Avenue, Cleveland, OH 44195

PA

Dr. Daniel Sterman (University of Pennsylvania Cancer Center)

(215) 614-0984

3400 Spruce Street, Philadelphia, PA 19104

PA

Dr. Joseph S. Friedberg (UPenn at Presybterian)

(215) 662-9195

39th and Market Streets, Philadelphia, PA 19104

PA

Fox Chase Cancer Center

888-FOX-CHASE

333 Cottman Avenue, Philadelphia, PA 19111

PA

University of Pittsburgh Cancer Institute

1-800-237-4PCI

5115 Centre Avenue, Pittsburgh, PA 15232

TX

Dr. David C. Rice (MD Anderson Cancer Center)

(713) 794-1477

1515 Holcombe Blvd, Houston, TX 77030

TX

Dr. J Michael DiMaio (UT Southwestern Medical Center)

(214) 645-7731

5323 Harry Hines Blvd, Dallas, Texas 75390-8879

TX

Dr. Roy Smythe (Scott & White)

(254) 724-2595

2401 South 31st Street, Temple, TX 76508

TX

San Antonio Cancer Institute

(210) 616-5590

7703 Floyd Curl Drive, San Antonio, TX 78229

VT

Vermont Cancer Center

(802) 656-4414

89 Beaumont Avenue, Burlington, VT 05405

WA

Dr. Eric Vallieres (University of Washington Medical Center)

(206) 598-4477

1959 NE Pacific, Seattle, WA 98195

WA

Fred Hutchinson Cancer Research Center

(206) 667-5000

1100 Fairview Avenue N, Seattle, WA 98109

WA

Seattle Cancer Care Alliance

(206) 288-1024

825 Eastlake Avenue E, Seattle WA 98109

WI

Comprehensive Cancer Center

1-800-622-8922

600 Highland Avenue, Madison, WI 53792-6164

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Financial Assistance Resources for Mesothelioma Patients

Cancer imposes heavy economic burdens on both patients and their families. For many people, a portion of medical expenses is paid by their health insurance plan. For individuals who do not have health insurance or who need financial assistance to cover health care costs, resources are available, including Government-sponsored programs and services supported by nonprofit organizations. Cancer patients and their families should discuss any concerns they may have about health care costs with their physician, medical social worker, or the business office of their hospital or clinic.

Listed below are Government agencies, organizations, and programs that are designed to provide assistance for cancer patients and their families. Resources provided by individual organizations vary, and it is important to check with a specific group to determine if financial aid is currently available. Organizations that provide publications in Spanish or have Spanish-speaking staff have been identified.

Cancer Treatment

Government

  • The State Health Insurance Assistance Program, or SHIP, is a national program that offers one-on-one counseling and assistance to people with Medicare and their families. Through grants to states, SHIPs provide free counseling and assistance via telephone and face-to-face interactive sessions, public education presentations and programs, and media activities.

    Trained counselors offer information, counseling and assistance to Medicare beneficiaries on a wide range of Medicare and Medicaid, and Medigap matters, including, Medicare+Choice health plan options, long-term care insurance, claims and billing problem resolution, information and referral on public benefit programs for those with limited income and assets, and other health insurance benefit information.

    To locate a SHIP program in your area click here (hyperlink to http://www.medicare.gov/contacts/static/allStateContacts.asp and you will be taken to the SHIP listing on Medicare.gov. In addition, you can be referred to your SHIP by contacting 1-800-Medicare and asking for health insurance counseling.

  • The Health Resources and Services Administration's (HRSA) Bureau of Primary Health Care offers Health Centers that provide health care to low-income and other vulnerable populations. Health Centers care for people regardless of their ability to pay. They provide primary and preventive health care, as well as services such as transportation and translation. To locate a Health Center , visit the “Service Delivery Sites” Web page at http://ask.hrsa.gov/pc/ on the Internet.
  • Hill-Burton is a program through which hospitals receive construction and modernization funds from the Federal Government. Hospitals that receive Hill-Burton funds are required by law to provide a reasonable volume of services to people who cannot afford to pay for their hospitalization and make their services available to all residents in the facility's area. Information about Hill-Burton facilities is available by calling the toll-free number or visiting the Web site shown below. A brochure about the program is available in Spanish.
    Telephone: 1-800-638-0742 ( Maryland residents call 1-800-492-0359)
    Web site: http://www.hrsa.gov/hillburton/default.htm
  • Medicaid (Medical Assistance), a jointly funded, Federal-State health insurance program for people who need financial assistance for medical expenses, is coordinated by the Centers for Medicare & Medicaid Services (CMS). At a minimum, states must provide home care services to people who receive Federal income assistance such as Social Security Income and Aid to Families with Dependent Children. Medicaid coverage includes part-time nursing, home care aide services, and medical supplies and equipment. Information about coverage is available from local state welfare offices, state health departments, state social services agencies, or the state Medicaid office. Check the local telephone directory for the number to call. Information about specific state contacts is also available on the Web site listed below. Spanish-speaking staff is available in some offices.
    Telephone: 1- 877-267-2323
    Web site: http://www.cms.gov/medicaid/consumer.asp
  • Medicare is a Federal health insurance program also administered by the CMS. Eligible individuals include those who are 65 or older, people of any age with permanent kidney failure, and disabled people under age 65. Medicare is divided into two parts, Part A and Part B. Part A pays for hospital care, home health care, hospice care, and care in Medicare-certified nursing facilities. Part B covers medically necessary services, including diagnostic studies, physicians' services, durable home medical equipment, and ambulance transportation; Part B also covers screening exams for several types of cancer. To receive information on eligibility, explanations of coverage, and related publications, call Medicare at the number listed below or visit their Web site. Some publications are available in Spanish. Spanish-speaking staff is available.
    Telephone: 1-800-633-4227 (1-800-MEDICARE)
    TTY: 1-877-486-2048
    Web site: http://www.medicare.gov
  • The Veterans Administration (VA) provides eligible veterans with treatment for service-connected injuries and other medical conditions. The VA offers limited medical benefits to family members of eligible veterans. The VA cancer program provides users of the veterans' health care system easy access to cancer prevention, detection, and treatment services. Its Web site offers cancer facts, information about care, a list of VA-designated comprehensive cancer centers, and the VA's national cancer strategy. For more information about the VA cancer program, visit the VA Cancer Web page at http://www1.va.gov/cancer/index.cfm on the Internet. Some publications are available in Spanish. Spanish-speaking staff is available in some offices.
    Telephone: 1-877-222-8387 (1-877-222-VETS)
    Web site: http://www1.va.gov/health/

Nonprofit Organizations

  • The Mesothelioma Research Foundation of America (MRFA) is a national nonprofit organization with the goal of finding better treatments for this difficult cancer. It offers free information and practical help to people with mesothelioma and their loved ones, and provides funding for mesothelioma research studies. For instance, MRFA is currently funding the phase II Veglin trial at the USC/Norris comprehensive cancer center.
    Telephone: 1-800-909-MESO (6376)
    Web site: http://www.mesorfa.org
  • Patient Assistance Programs are offered by some pharmaceutical manufacturers to help pay for medications. To learn whether a specific drug might be available at reduced cost through such a program, talk with a physician or a medical social worker or visit the drug manufacturer's Web site. Most pharmaceutical companies will have a section titled “patient assistance programs” on their Web site. The Partnership for Prescription Assistance has information about more than 475 public and private patient assistance programs.
    Telephone: 1-888-477-2669 (1-888-4PPA-NOW)
    Web site: https://www.pparx.org/Intro.php

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Practical Needs

In addition to cancer treatments, many cancer patients need assistance paying for transportation to and from medical appointments and basic living expenses such as food and housing. Listed below are organizations dedicated to helping cancer patients and their families during and after the patient's treatment.

Government

  • Eldercare Locator is a referral service provided by the U.S. Administration on Aging, an agency within the U.S. Department of Health and Human Services. Eldercare Locator information specialists will link callers with state and area agencies on aging for information and referral to local agencies that provide a wide array of senior services. This service is available Monday through Friday from 9:00 a.m. to 8:00 p.m., EST.
    Telephone: 1-800-677-1116
  • GovBenefits.gov is a partnership of Federal agencies with a shared vision to provide improved, personalized access to government assistance programs. This Web site's online screening tool is free, easy-to-use, and completely confidential. The user answers a series of questions, then the Web site generates a list of government benefit programs that the user may be eligible to receive, along with information about how the user can apply.
    Telephone: 1-800-333-4636 (1-800-FED-INFO)
    Web site: http://www.govbenefits.gov
  • The Social Security Administration (SSA) is the Government agency that oversees Social Security and Supplemental Security Income. Social Security provides monthly income for eligible elderly and disabled individuals. More information about these and other SSA programs is available by calling the toll-free number listed below. Spanish-speaking staff are available. Additional contact information for the SSA is available at http://www.ssa.gov/reach.htm on the Internet.
    Telephone: 1-800-772-1213
    TTY: 1-800-325-0778
    Web site: http://www.ssa.gov/
  • Supplemental Security Income (SSI) is administered by the SSA and supplements Social Security payments for aged, blind, and disabled people with little or no income. It provides cash to meet basic needs for food, clothing, and shelter. Information on eligibility, coverage, and how to file a claim is available from the SSA. The Benefit Eligibility Screening Tool is available at https://s044a90.ssa.gov/apps12/best/benefits/ on the Internet.
    Web site: http://www.ssa.gov/notices/supplemental-security-income/

Nonprofit Organizations

  • The Mesothelioma Research Foundation of America (MRFA) is a national nonprofit organization with the goal of finding better treatments for this difficult cancer. It offers free information and practical help to people with mesothelioma and their loved ones, and provides funding for mesothelioma research studies. For instance, MRFA is currently funding the phase II Veglin trial at the USC/Norris comprehensive cancer center.
    Telephone: 1-800-909-MESO (6376)
    Web site: http://www.mesorfa.org
  • The Mesothelioma Research Foundation of America (MRFA) Cancer Survivors Network (1-800-909-6376)
  • The American Cancer Society (ACS) offers programs that help cancer patients, family members, and friends cope with the treatment decisions and emotional challenges they face. To get information about these programs, call the national ACS office, or find a local ACS office by typing your location into the search boxes on the “My Local ACS Office” Web page at http://www.cancer.org/asp/search/mla/mla_global.asp?navToScreen=mla_0 on the Internet. Some materials are published in Spanish. Spanish-speaking staff is available.
    Telephone: 1-800-227-2345 (1-800-ACS-2345)
    Web site: http://www.cancer.org

Other Resources

In addition to the Government-sponsored programs and organizations already listed, these general resources may also be helpful:

Government

  • Some nonprofit community hospitals are able to provide care for patients in need of financial assistance. Other hospitals have indigent or charity care programs funded by state and local governments. For information about these programs, contact a hospital social worker, who will be able to explain these types of programs. Another type of assistance may be offered through your local health department. The National Cancer Institute's (NCI) Cancer Information Service may be able to provide information about local programs by phone at 1-800-4-CANCER (800 422-6237).

State and local social services agencies can provide help with food, housing, prescription drugs, transportation, and other medical expenses for those who are not eligible for other programs. Information can be obtained by contacting your state or local agency; this number is found in the local telephone directory.

  • The Internal Revenue Service (IRS) can provide information about tax deductions for medical costs that are not covered by insurance policies. For example, tax deductible expenses might include mileage for trips to and from medical appointments, out-of-pocket costs for treatment, prescription drugs or equipment, and the cost of meals during lengthy medical visits. Deductible-qualified medical expenses include those incurred by the patient, spouse, and dependents. Medical expenses may also be deducted for someone who would have qualified as a dependent for the purpose of taking personal exemptions except that the person did not meet the gross income or joint return test. Nursing home expenses are allowable as medical expenses in certain instances. If the patient, a spouse, or dependent is in a nursing home, and the primary reason for being there is for medical care, the entire cost, including meals and lodging, is a medical expense. The local IRS office, tax consultants, or certified public accountants can determine whether medical costs are tax deductible.
    Telephone: 1-800-829-1040
    Web site: http://www.irs.gov

Nonprofit Organizations

Community voluntary agencies and service organizations such as the United Way of America, Salvation Army, Lutheran Social Services, Jewish Social Services, and Catholic Charities may offer help. These organizations are listed in your local phone directory. Some churches and synagogues may provide financial help or services to their members.


Drug Assistance Programs (Indigent Drug Programs)

Patient Assistance Programs are offered by many pharmaceutical manufacturers to help pay for medications. These programs are sometimes called Indigent Drug Programs. To learn whether a specific drug might be available at reduced cost or for free through such a program, talk with a physician or a medical social worker or visit the drug manufacturer's web site. Most pharmaceutical companies will have a section entitled “patient assistance programs” on their web site.

The Partnership for Prescription Assistance has information about more than 475 public and private patient assistance programs. If you have easy internet access then this website is the best place to start for getting financial assistance to pay for the drugs your doctor is recommending. You can type in the name of the drug and see right away what programs are available to you.

Telephone: 1-888-477-2669 (1-888-4PPA-NOW)
Web site: https://www.pparx.org/Intro.php

At the Mesothelioma Research Foundation of America, you can call toll free (800) 909-Meso (6376) to talk with one of our Cancer Information Specialists who will gladly look up the phone numbers or the web site of the pharmaceutical company that makes the drug you are using. They can explain to you the process of getting the drug for free. Typically your doctor will need to sign off on the application form. You can either fill the form out online or you can print it out. The most commonly used drug for mesothelioma is doxorubicin, also called Doxil. For example, you can apply for that drug at http://www.doxiline.com.

You can also call toll free number to the pharmaceutical company to request the application form be sent to you.

Telephone Numbers of Some Pharmaceutical Companies' Assistance Programs

Company Drug Toll-free Telephone Number
Ortho Biotech Products doxorubicin (aka Doxil) 800 553-3851
Sicor Pharmaceuticals, Inc. Carboplatin, Cisplatin 800 729-9991
Pfizer Camptosar, Lyrica, Motrin 866-776-3700

National Organizations That Can Help

People with cancer and their families sometimes need assistance coping with the emotional as well as the practical aspects of their disease. This fact sheet includes some of the national nonprofit organizations that provide this type of support. It is not intended to be a comprehensive listing of all organizations that offer these services in the United States, nor does inclusion of any particular organization imply endorsement by the Mesothelioma Research Foundation of America. The intent of this fact sheet is to provide information useful to individuals nationally. For that reason, it does not include the many local groups that offer valuable assistance to patients and their families in individual states or cities.

  • American Cancer Society (ACS)
    Telephone: 404-320-3333
    Toll Free: 1-800-227-2345 (1-800-ACS-2345)
    Web site: http://www.cancer.org

The ACS is a voluntary organization that offers a variety of services to patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs. Staff can accept calls and distribute publications in Spanish. A local ACS unit may be listed in the white pages of the telephone directory under “American Cancer Society.”

Source : www.mesorfa.org

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Mesothelioma Symptoms

The most common Mesothelioma symptoms are the following:

Recent onset of shortness of breath (31%)
Recent increase in shortness of breath (30%)
Chest pain (43%)
 
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